Charity Support

TEFMA is pleased to support its nominated charity, BrashA-T Ataxia.  TEFMA supports BrAshA-T through  raising awareness, fundraising at events and by donating to the the charity in lieu of speaker gifts at TEFMA hosted workshops and forums.  

 

 

 

What is Ataxia-Telangiectasia?

Ay-TACK-see-uh Teh-LAN-jick-TAY-sha

Ataxia telangiectasia (A-T) is a primary immunodeficiency disease that affects a number of different organs in the body. It is a rare and incurable disease often described as the worst parts of cerebral palsy, muscular dystrophy and cystic fibrosis. 

A-T occurs when a child is born with both copies of the “ATM” gene disrupted, which prevents his or her cells from producing any ATM protein.  As children with A-T lack the ATM protein they are unable to properly repair or respond to certain types of DNA damage, giving rise to genetic instability and as a consequence, an increased risk of cancer, in fact, a risk 1,000 times greater than the general population. About one-third of children with A-T will develop cancer.

For reasons yet unknown, A-T affects the cerebellum, which is responsible for muscle control. As the cerebellum cells start to die, impaired muscle control results in difficulty with balancing, walking, co-ordination and fine and gross motor skills. This eventually leads to a loss of any movement or activity that requires the use of a muscle – eye movements, speaking, writing, swallowing, bladder control, breathing, coughing. Children with A-T are generally confined to a wheelchair between the ages of 8-10 years old, and rarely survive beyond their 20s.

BrAshA-T aims to raise awareness about A-T and to raise much needed funds for ongoing research currently in progress.  You can find out more by Visiting the website >> 
 
We encourage our network to donate HERE>> 

To date, TEFMA have raised $8,553.  Thank you to everyone who has kindly donated to this worthy cause!

TEFMA Student Study & Living Spaces Workshop (in lieu of speaker gifts)$500
TEFMA Student Study & Living Spaces Workshop (charity game donation)$240
TEFMA Grounds Workshop (charity game donation)$740
TEFMA Grounds Workshop (in lieu of speaker gifts)$500
Kenneth Holder$500
TEFMA Awards Dinner 2019$1,270
TEFMA Smarter Data Workshop (in lieu of speaker gifts)$500
TEFMA Smarter Data Workshop (charity game donation)$1,123
TEFMA Directors' Forum (in lieu of speaker gifts)$500
TEFMA Campus Services Workshop (in lieu of speaker gifts)$500
Carole Samaha - donation$100
TEFMA Learning Environments Workshop (in lieu of speaker gifts)$500
Anonymous Donation$100
Andrew Inglis - donation$100
TEMC 2018 - delegate donations$200
TEFMA Awards Dinner 2018$1,180

 

Why are TEFMA aligning with BrAshA-T as their charity partner?

Wayne Millar, TEFMA Vice President, is a grandfather of two, Charlie and Zara Millar, who were both born with this disease.  The first major fundraiser for TEFMA supporting BrAshA-T was the 2018 TEFMA Awards Dinner which was held at Crown Perth which managed to raise over $1,000.00 thanks to everyone's kind support.

The below photo was taken when they were surprised by the Sunrise morning TV show at their home in Wagga Wagga prior to Christmas.  To watch the sunrise segment, please click here.